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TweetDeck" title="Wed Jun 03 14:22:35 +0000 2015" target="_blank">We will be in The Wulfrun Centre in the piazza opposite Peacocks and Poundland. TweetDeck" title="Wed Jun 03 12:57:36 +0000 2015" target="_blank">For World Sickle Cell day 19/06/2015 we are raising money in conjunction with @krispykremeUK by selling doughnuts at the Wulfrun Centre. TweetDeck" title="Wed Dec 17 15:45:03 +0000 2014" target="_blank">The team are having a 'Coffee Morning' on 23rd December 2014 at the office for service users. Twitter Web Client" title="Thu Jun 19 11:14:24 +0000 2014" target="_blank">RT @sickleSTRONG: World Sickle Cell Day 2014 World Sickle Cell Day 2014 celebrated all over the world by the people on 19th of... http://t… Twitter Web Client" title="Thu Jun 19 11:13:21 +0000 2014" target="_blank">Very successful event last night thank you to all who attended and #WomenInTheatre who made it possible #WorldSickleCellDay Twitter Web Client" title="Thu Jun 19 10:43:05 +0000 2014" target="_blank">Today is #WorldSickleCellDay thanks to all the organisations working hard to raise awareness of Sickle Cell and those affected by it daily Twitter Web Client" title="Tue Dec 10 12:42:21 +0000 2013" target="_blank">RT @Sindiso_Soza: "I will always fall short of Madiba's example, but he makes me want to be a better man" - Obama. #MandelaMemorial Twitter Web Client" title="Tue Dec 10 12:38:43 +0000 2013" target="_blank">#MandelaMemorial the memory of you will never fade... Twitter Web Client" title="Fri May 17 12:59:37 +0000 2013" target="_blank">RIP Nadine... Gone but never forgotten, Kept safe in our hearts, wrapped up like cotton... From all of us at the Project Twitter Web Client" title="Fri May 17 08:58:05 +0000 2013" target="_blank">Our Welfare Reform Event sponsored by @paycare later today at The Novotel Hotel Wolverhampton 6.30pm contact The Project for further details

Information for parents

It is very important that parents build the self-esteem of children and teenagers who have Sickle Cell Disorder or Thalassaemia Major. Parents like teachers need to listen to and discuss any concerns or issues with the child and encourage them continuously. Like any teenager a child with Sickle Cell Disorder or Thalassaemia Major needs praise, encouragement and support.

There are times a child /teenager who has either of the conditions may feel they look slightly different to their peers, some may look younger as they mature later because of the condition. Re-assure these children that their bodies will mature in time though this may take a little longer than their counterparts. Many may feel conscious about any surgery they may have had as it may have left them with scars. Focus on a child's positive points and strengths in order to help them feel good, distracting them from the negative way they may feel about themselves.

Teenagers with the condition will possibly approach parents to talk about sex and relationships. Advise them as you would any other teenager to practice safe sex and that if he or she has Sickle Cell Disorder then they are more prone to infections and therefore should be made aware of the risks of sexually transmitted diseases. Emphasise that if he or she is a carrier of Sickle Cell or Thalassaemia Trait, or the disorder, then to make sure their partner is tested in the future when they plan to marry

Quick fact

Sickle Cell & Thalassaemia Support Project offers free counselling on Thalassaemia in different community languages.

Kids section

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