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TweetDeck" title="Wed Jun 03 14:22:35 +0000 2015" target="_blank">We will be in The Wulfrun Centre in the piazza opposite Peacocks and Poundland. TweetDeck" title="Wed Jun 03 12:57:36 +0000 2015" target="_blank">For World Sickle Cell day 19/06/2015 we are raising money in conjunction with @krispykremeUK by selling doughnuts at the Wulfrun Centre. TweetDeck" title="Wed Dec 17 15:45:03 +0000 2014" target="_blank">The team are having a 'Coffee Morning' on 23rd December 2014 at the office for service users. Twitter Web Client" title="Thu Jun 19 11:14:24 +0000 2014" target="_blank">RT @sickleSTRONG: World Sickle Cell Day 2014 World Sickle Cell Day 2014 celebrated all over the world by the people on 19th of... http://t… Twitter Web Client" title="Thu Jun 19 11:13:21 +0000 2014" target="_blank">Very successful event last night thank you to all who attended and #WomenInTheatre who made it possible #WorldSickleCellDay Twitter Web Client" title="Thu Jun 19 10:43:05 +0000 2014" target="_blank">Today is #WorldSickleCellDay thanks to all the organisations working hard to raise awareness of Sickle Cell and those affected by it daily Twitter Web Client" title="Tue Dec 10 12:42:21 +0000 2013" target="_blank">RT @Sindiso_Soza: "I will always fall short of Madiba's example, but he makes me want to be a better man" - Obama. #MandelaMemorial Twitter Web Client" title="Tue Dec 10 12:38:43 +0000 2013" target="_blank">#MandelaMemorial the memory of you will never fade... Twitter Web Client" title="Fri May 17 12:59:37 +0000 2013" target="_blank">RIP Nadine... Gone but never forgotten, Kept safe in our hearts, wrapped up like cotton... From all of us at the Project Twitter Web Client" title="Fri May 17 08:58:05 +0000 2013" target="_blank">Our Welfare Reform Event sponsored by @paycare later today at The Novotel Hotel Wolverhampton 6.30pm contact The Project for further details

Privacy Policy

(for use by Sickle Cell & Thalasseamia Project Limited, owner of www.sctsp.org.uk)

1. Introduction: ("Sickle Cell & Thalasseamia Project") takes your privacy seriously. This privacy policy describes how and why we obtain, store and process data which can identify you. We may update this policy from time to time and shall indicate on the web site when changes have been made.

2. The Information we collect: Information is collected from you when you register with us, or when you contribute to or use some of the advanced features on the site. The information we collect is clearly set out on the web page on which we collect it. See for example our registration page and order form. In addition, we may collect your IP address and use cookies unless you configure your web browser not to accept them.

3. Why we collect it: We collect information about you so that we can personalise your use of the site, assist your use of the site and improve the site generally. Depending upon your selections for our data protection questions we may arrange for you to be sent information about related products and services from us and carefully selected third parties (see section 4). You may update the answers to your questions at any time.

4. Who we disclose it to:

  1. We will only pass on information about you as an individual (as opposed to aggregate information) to third parties to enable us to perform services requested by you or with your prior consent.
  2. If you give your consent, we will pass your contact details to third parties who may then occasionally send communications to you to provide information, offers and services that may be of interest to you.
  3. In certain circumstances we may need to disclose information about you if you breach this privacy policy or if you breach the Terms and Conditions. We may also disclose or access your account if required to do so by law or by any Governmental body.
  4. We will only pass on information about you as an individual (as opposed to aggregate information) to third parties overseas to enable us to perform services requested by you.

5. Data Protection: Sickle Cell & Thalasseamia Project is registered with the Information Commissioner in the UK as a "data controller" in accordance with the provisions of the Data Protection Act 1998. Further details of the registration are available at www.dpr.gov.uk

6. Security: Keeping information about you secure is very important to us and certain sections of the site may encrypt data using SSL or a comparable standard. However, no data transmission over the Internet can be guaranteed to be totally secure. As a result, whilst we strive t protect your personal information, we cannot ensure or warrant the security of any information which you send to us, and you do so at your own risk.

7. Automated decisions: Parts of www.sctsp.org.uk and our billing process (which is transacted via Worldpay) are automatic and we may process your personal data as part of www.sctsp.org.uk and the billing process.

8. Accessing and updating your personal information: We will always let you have a copy of personal information we have about you, should you request it, and you may correct it if you wish. Instructions about how to do this are available from data@sctsp.org.uk.

9. Questions?: If you have any questions or complaints relating to this Privacy Policy or how we use the personal information we have about you, please contact data@sctsp.org.uk. We will endeavour to respond to you promptly.

Quick fact

Thalassaemia can exist in two forms: Thalassaemia Trait & Thalassaemia Major

Kids section

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