Sickle Cell & Thalssaemia Support Project

 

1. Introduction​

​

Community Family Support Service (FSS) by the Sickle Cell and Thalassaemia Support Project (SCTSP) is committed to protecting the privacy and personal data of our service users. This notice explains how we collect, use, store, and share personal data in compliance with the UK General Data Protection Regulation (UK GDPR) and the Data Protection Act 2018.

​

​​​

2. Our contact details​

​

Family Support by SCTSP
Paycare House, George Street, Wolverhampton, WV2 4DX
Tel: 01902 424147
Email: Sutinder.Herian@sctsp.org.uk

​

Main Contact: Sutinder Herian, Executive Director
Company Limited by Guarantee – Reg. No. 3575079
Registered Charity No: 1077687

​

​

3. What Information We Collect​

​

We collect personal data relevant to the services you access or are referred for. This includes:

• Name, address, contact numbers, and email

• Date of birth and gender

• NHS/hospital/other reference numbers

​

We also collect special category and sensitive data such as:

• Race and ethnic origin

• Religion or belief

• Health data and genetic information

• Sexual orientation

• Safeguarding and police data

• Criminal offence data​

​

​

4. How We Collect Your Data​

​

We receive information:

• Through referrals from local authorities, schools, health services, or directly from you

• Via paper forms, phone, email, face-to-face meetings, online forms, and website cookies

​​

​

5. Why We Collect Your Data​

​

We collect your data to:

• Provide tailored support services

• Fulfil our legal and funding obligations

• Monitor and improve our services

​

Our services contribute to a national initiative led by the Department for Levelling Up, Housing and Communities (DLUHC)

aiming to:

1. Support child development and school readiness

2. Improve parenting and family resilience

3. Promote better health and life chances

​​

​

6. Lawful Basis for Processing​​

​

We rely on the following lawful bases:

• Consent – You may withdraw consent at any time

• Contract – To deliver services you’ve requested

• Legal Obligation – Childcare Act 2006; Children Act 2004

• Vital Interests – For safeguarding purposes

• Public Task – As part of DLUHC’s national initiative

​​

​

7. Data Sharing​

​

We share relevant data with:

• Local authorities, schools, NHS, ICB’s, police, and other trusted partners.

• Data is anonymised where possible for reporting purposes

• We do not transfer data outside the UK unless to countries with adequate safeguards compliant with UK GDPR

​​

​

8. Data Retention ​

​

• Personal data is retained in line with Staffordshire County Council’s current Records Retention Schedule

• Children’s records are held for a minimum of 2 years or longer if required by statutory guidance or contracts

• Data may also be retained for scientific or historical research under Article 89 UK GDPR

​​

​

9. How We Store Your Data

​

• Digital data is stored on local secure servers and backed up to cloud providers located in the UK or countries with adequate GDPR safeguards

• Paper files are securely stored and managed by our team

​​

​

10. Your Data Protection Rights

​

You have right to:

• Access your data

• Request correction of inaccurate/incomplete data

• Request erasure (under certain conditions)

• Restrict or object to processing

• Request data portability

​

You are not required to pay a fee to exercise your rights. We have one month to respond to any request.

​​​

​

11. Subject Access Requests (SARs)

​

To make a SAR, contact:
Email: Sutinder.Herian@sctsp.org.uk
Phone: 01902 424147
Post: Family Support by SCTSP, Paycare House, George Street, Wolverhampton, WV2 4DX

​​

​

12. Cookie

​

Our website may use cookies to improve functionality and monitor usage. Where applicable, we request your consent for non-essential cookies.

​​

​

13. Complaints

​

You may contact the Information Commissioner’s Office (ICO) if you are unhappy with how we handle your data:

Information Commissioner’s Office
Wycliffe House, Water Lane, Wilmslow, Cheshire, SK9 5AF
Helpline: 0303 123 1113
Website: https://ico.org.uk

​

For questions about this policy or your personal data, please get in touch using the contact details above.