Sickle Cell and Thalassaemia Support

Our Sickle Cell and Thalassaemia Support service is dedicated to improving the lives of individuals and families affected by these inherited blood disorders. We offer culturally sensitive, person-centred support that includes one-to-one advice, advocacy, and emotional wellbeing services. Through education, awareness sessions, and collaboration with healthcare providers, we aim to increase understanding and reduce stigma around these conditions. Whether newly diagnosed or managing ongoing challenges, we’re here to provide guidance, empower informed decision-making, and ensure access to appropriate care and support networks.

Download our Service Information Leaflet

Our Services

Genetic Counselling Linked to Screening Programmes

We work closely with the NHS to offer the NHS Sickle Cell and Thalassaemia Screening Programme.

All unsual results via the antenatal and neonatal screening programmes are referred to the project to be offered a counselling appointment.

Community Haemaglobinpathy Services

As part of our commitment to support service users and families in the management of their condition, we offer a range of services.

Care Plans and Assessments
Visits to clients in hospital, home or the community
Referrals to other agencies

Training, Education and Awareness

We offer training sessions and educational workshops to raise awareness of sickle cell and thalassaemia within communities, schools, and healthcare settings. Our aim is to improve understanding of these conditions, and promote better care through.

Our Work and Impact

Job Vacancy: Family Support Worker (4 Posts)

Employer: Sickle Cell & Thalassaemia Support Project Location: South Staffordshire, Stafford and Wolverhampton Salary: £23,500 - £25,183 pa (dependant of experience) Hours: 37.5 hours per week, Monday to Friday Closing date: 31st October 2025 at 4pm Reference: 029 The Board of Directors wish to appoint 4 Family Support Workers to support the Community Family Support Service in 2 districts of Staffordshire (South Staffordshire and Stafford); Our vision is to make Early Help av

Supporting Families Affected by Sickle Cell & Thalassaemia at Christmas

This December, the Sickle Cell & Thalassaemia Support Project will bring together families affected by sickle cell and thalassaemia blood disorders across Wolverhampton, Walsall and Dudley for our annual donation events. Living with these blood disorders brings daily challenges, and the festive season can add extra pressures. We want to make sure families we support have access to the essentials they need to stay warm and well over Christmas. We are currently running a fundra

Sickle Cell Disease: Patient Experience Survey

If you are living with sickle cell disease, we are keen to get your views. Deadline to complete the Patient Experience Survey is Friday...