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Sickle Cell & Thalassaemia


A Guide to Sickle Cell Disease
What is Sickle Cell Disease? Sickle cell disease is the name for a group of inherited health conditions that affect the red blood cells,...


Sickle Cell Treatments
There are several treatments available to help manage sickle cell (HbSS) and prevent or treat its symptoms. Your GP, hospital doctor or...


The Importance of Newborn Screening for Sickle Cell Disease and Thalassaemia
Newborn screening is critical when ensuring the wellbeing and health of our precious little ones. We can make a profound difference in...

No Ones Listening Report
On Monday 15th November, 2021, the All-Party Parliamentary Group on Sickle Cell and Thalassaemia (SCTAPPG) published the report 'No Ones...


Can you tell it's Sickle Cell?
This campaign aims to increase awareness of the key signs and symptoms of a Sickle Cell crisis, particularly among urgent emergency care...


Sickle Cell Patient Interview
In May 2021, Dr Amanda interviewed Loury Mooruth, a board member for SCTSP and sickle cell patient. They discuss how and when her sickle...

Carriers of Sickle Cell
What is sickle cell disease? Sickle Cell Disease also known as sickle cell disorder, is the collective name for several inherited blood...


Thalassaemia
What is thalassaemia? What does it mean to carry thalassaemia? How could carrying beta thalassaemia affect a child? What to do if they...
Unusual Genes for Haemoglobin
Sickle cell disorders occur when unusual genes for haemoglobin are inherited from both parents. Sickle cell disorders can cause major...


What is Sickle Cell Disease?
Sickle cell disorders are inherited blood disorders (haemoglobinopathies) affecting the haemoglobin, an oxygen-carrying substance that...
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