On Monday 15th November, 2021, the All-Party Parliamentary Group on Sickle Cell and Thalassaemia (SCTAPPG) published the report 'No Ones Listening'. This report came after an inquiry into avoidable deaths and failures of care for those with affected by sickle cell.
This image belongs to the Sickle Cell Society
The ‘No One’s Listening’ report was jointly published by the APPG on Sickle Cell and Thalassaemia and the Sickle Cell Society.
Key findings from the inquiry include:
Low awareness of sickle cell among healthcare professionals and clear examples of inadequate training and insufficient investment in sickle cell care
Evidence of sub-standard care for sickle cell patients admitted to general wards or attending Accident & Emergency (A&E) departments
Frequent reports of negative attitudes towards sickle cell patients and a weight of the evidence suggests that such attitudes are often underpinned by racism
SCTSP had a meeting with MP Pat Mcfadden who, at the time of the report being published,
was the chair for the SCTAPPG. The purpose of this meeting was for Pat Mcfadden to tell the project about the report and hear from service users present about their experiences. There was an agreement of need to reduce the inequalities faced by sickle cell patients in the UK.
Download the full report here: No One’s Listening – A Report (PDF)