The All-Party Parliamentary Group (APPG) on Sickle Cell and Thalassaemia is looking at progress in improving sickle cell and thalassaemia services. The Sickle Cell Society is gathering evidence for the inquiry and wants to hear from people affected by sickle cell about their experiences of care and what still needs to improve. Evidence can be submitted until Wednesday 30th September 2026. At the Sickle Cell & Thalassaemia Support Project, we want to make sure the voices of patients and carers...

We are pleased to share the NHS England Sickle Cell and Thalassaemia National Resource for Schools and Educators, developed to support children and students living with sickle cell and thalassaemia. The resources were developed in collaboration with dedicated working groups for each condition, bringing together the expertise and lived experience of patients, parents, educators and healthcare professionals, alongside the NHS Technology Enhanced Learning team. Accessing the resources Please...

We would like to say a huge thank you to Safran (Wolverhampton) for kindly providing tickets for families supported by the Sickle Cell & Thalassaemia Support Project to enjoy their Family Fun Day. It was a fantastic opportunity for families to spend time together and enjoy the day.