Share Your Experience
Share Your Experience of Sickle Cell Care
The All-Party Parliamentary Group (APPG) on Sickle Cell and Thalassaemia is carrying out an inquiry into progress in improving sickle cell and thalassaemia services. This follows the No One's Listening report, which highlighted serious failures in care and avoidable deaths among people with sickle cell.
The inquiry is looking at what has improved since the report and what still needs to change, more details can be found here.
APPG Inquiry Call For Evidence
Our focus is on the experiences of patients and carers in Wolverhampton, Walsall and Dudley.
Your experiences can help highlight:
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What is working well
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What needs to improve
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Your experiences of accessing and receiving care
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Changes you would like to see in the future
You can share your experience by completing our short survey.
Complete the survey by Thursday 24th September 2026.
We can submit your feedback to the Sickle Cell Society on your behalf.
You can also join one of our upcoming online or in-person sessions to share your experiences and discuss the issues that matter to you.
Share Your Experience - OnlineWed 16 SeptLink to be shared the day before
Share Your Experience of Sickle Cell CareTue 22 SeptBob Jones Community Hub