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Improve Emergency Care for
Sickle Cell Disease Patients

Your Voice Matters!

We need your help to improve the healthcare experiences for individuals living with Sickle Cell Disease. 

Share your experiences with Unplanned Emergency Care or Emergency Department services and help us make a difference!

What we're studying:

  • Access to emergency care for Sickle Cell Disease patients

  • Quality of healthcare support

  • Transition for care from paediatric to adult services

  • Suggestions for improving emergency and overall healthcare services

Why Participate?

Make a Difference: Your feedback will help shape better healthcare services for Sickle Cell Disease patients

Share Your Experiences: Tell us what works and what doesn't in your healthcare journey

Influence Change: Help us create evidence-based proposals for healthcare improvements

Who can participate?

  • Individuals living with Sickle Cell Disease

  • Those who have experiences transition from paediatric to adult services in the past 5 years

Participants must be living in Wolverhampton, Walsall or surrounding areas

To share your views and participate in the study, please register for an event below.

Events

  • Online Drop-in Session- Improving Emergency Care for Sickle Cell Disease Patients
    Online Drop-in Session- Improving Emergency Care for Sickle Cell Disease Patients
    Multiple Dates
    Fri, 27 Sept
    Google Meet
    27 Sept 2024, 10:00 – 11:00
    Google Meet
    27 Sept 2024, 10:00 – 11:00
    Google Meet
    Living with Sickle Cell Disease? We are keen to hear your views on how emergency care for Sickle Cell patients can be improved.
  • Online Drop-in Session- Improving Emergency Care for Sickle Cell Disease Patients
    Online Drop-in Session- Improving Emergency Care for Sickle Cell Disease Patients
    Multiple Dates
    Sat, 21 Sept
    Google Meet
    21 Sept 2024, 10:00 – 11:00
    Google Meet
    21 Sept 2024, 10:00 – 11:00
    Google Meet
    Living with Sickle Cell Disease? We are keen to hear your views on how emergency care for Sickle Cell patients can be improved.
  • Wolverhampton Walk, Tea & Talk
    Wolverhampton Walk, Tea & Talk
    Fri, 13 Sept
    West Park
    13 Sept 2024, 10:30 – 12:00
    West Park, 76 Park Rd W, Wolverhampton WV1 4PH
    13 Sept 2024, 10:30 – 12:00
    West Park, 76 Park Rd W, Wolverhampton WV1 4PH
    Living with Sickle Cell Disease? Join us for our Walk, Tea & Talk and share your views on how emergency care for Sickle Cell patients can be improved
  • Online Drop-in Session- Improving Emergency Care for Sickle Cell Disease Patients
    Online Drop-in Session- Improving Emergency Care for Sickle Cell Disease Patients
    Multiple Dates
    Thu, 12 Sept
    Google Meet
    12 Sept 2024, 17:00 – 18:00
    Google Meet
    12 Sept 2024, 17:00 – 18:00
    Google Meet
    Living with Sickle Cell Disease? We are keen to hear your views on how emergency care for Sickle Cell patients can be improved.
  • Online Drop-in Session- Improving Emergency Care for Sickle Cell Disease Patients
    Online Drop-in Session- Improving Emergency Care for Sickle Cell Disease Patients
    Multiple Dates
    Sat, 07 Sept
    Google Meet
    07 Sept 2024, 10:00 – 11:00
    Google Meet
    07 Sept 2024, 10:00 – 11:00
    Google Meet
    Living with Sickle Cell Disease? We are keen to hear your views on how emergency care for Sickle Cell patients can be improved.
  • Breakfast Morning
    Breakfast Morning
    Fri, 06 Sept
    Bob Jones Community Hub
    06 Sept 2024, 10:00 – 11:30
    Bob Jones Community Hub, Bromley St, Wolverhampton WV2 3AS, UK
    06 Sept 2024, 10:00 – 11:30
    Bob Jones Community Hub, Bromley St, Wolverhampton WV2 3AS, UK
    Living with Sickle Cell Disease in Wolverhampton? Join us for a free breakfast morning! We are keen to hear your views on how emergency care for Sickle Cell patients can be improved.
  • Around the World with VR
    Around the World with VR
    Thu, 29 Aug
    Bob Jones Community Hub
    29 Aug 2024, 14:00 – 15:30
    Bob Jones Community Hub, Bromley St, Wolverhampton WV2 3AS, UK
    29 Aug 2024, 14:00 – 15:30
    Bob Jones Community Hub, Bromley St, Wolverhampton WV2 3AS, UK
    Join us for a trip around the world with Virtual Reality Headsets. This is a free event for 13 to 18 year olds affected by sickle cell or thalassaemia blood disorders.
  • Online Drop-in Session- Improving Emergency Care for Sickle Cell Disease Patients
    Online Drop-in Session- Improving Emergency Care for Sickle Cell Disease Patients
    Multiple Dates
    Wed, 28 Aug
    Google Meet
    28 Aug 2024, 18:00 – 19:00
    Google Meet
    28 Aug 2024, 18:00 – 19:00
    Google Meet
    Living with Sickle Cell Disease? We are keen to hear your views on how emergency care for Sickle Cell patients can be improved.
  • Chill and Chat
    Chill and Chat
    Wed, 21 Aug
    Jacks Cafe Wolverhampton
    21 Aug 2024, 17:00 – 19:00
    Jacks Cafe Wolverhampton, Frederick St, Wolverhampton WV2 4DU, UK
    21 Aug 2024, 17:00 – 19:00
    Jacks Cafe Wolverhampton, Frederick St, Wolverhampton WV2 4DU, UK
    This is a free event for individuals aged 16+ affected by Sickle Cell or Thalassaemia blood disorders
  • Online Drop-in Session- Improving Emergency Care for Sickle Cell Disease Patients
    Online Drop-in Session- Improving Emergency Care for Sickle Cell Disease Patients
    Sat, 27 Jul
    Google Meet
    27 Jul 2024, 10:00 – 11:00
    Google Meet
    27 Jul 2024, 10:00 – 11:00
    Google Meet
    Living with Sickle Cell Disease? We are keen to hear your views on how emergency care for Sickle Cell patients can be improved.
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