6 Things Everyone Should Know About Sickle Cell

This Sickle Cell Awareness Day, we are sharing six things everyone should know about sickle cell disease and why they matter.

1) Sickle cell is inherited

A child can only have sickle cell disease if they inherit the sickle gene from both parents. Most carriers do not have symptoms and may not know they carry the gene, the only way to find out if you are a carrier is through a blood test.

Why it matters: Knowing your carrier status can help you make informed decisions and have important conversations about inherited conditions.

2) Screening starts before birth

In England, pregnant women are offered screening for sickle cell and thalassaemia and all new born babies are screened shortly after birth. Early diagnosis means babies can receive specialist care and support from the start.

Why it matters: Screening saves lives and improves health outcomes.

For more information can be found here.

3) Sickle cell affects more than just the blood

Sickle cell can cause severe pain, anaemia, fatigue and serious complications including infections, acute chest syndrome and stroke. It can affect education, employment, relationships and mental wellbeing.

Why it matters: Sickle cell is a serious lifelong condition that affects many aspects of daily life.

4) Pain isn't always visible

Many people living with sickle cell may look well while experiencing pain, exhaustion or other symptoms. Pain crises can happen suddenly and sometimes require emergency treatment.

Why it matters: Believing and understanding people's experiences can reduce stigma and improve support.

5) Sickle cell can affect anyone

Sickle cell can affect anyone but it is more prevalent among people with African, Caribbean, Middle Eastern, Mediterranean and South Asian decent.

Why it matters: Raising awareness can help tackle health inequalities and improve understanding within our communities.

6) Blood donation saves lives

Many people living with sickle cell rely on blood transfusions as part of their treatment. The best blood matches often come from donors with similar inherited blood characteristics, which are more likely to be found among people of black heritage.

Why it matters:

One blood donation could help someone living with sickle cell receive the treatment they need. For more information, visit blood.co.uk.

Sickle cell affects thousands of people and families across the UK, yet misconceptions and a lack of awareness remain. By learning the facts, understanding the impact of the condition and recognising the importance of blood donation, we can all play a part in creating more informed and supportive communities.