A team of researchers based at King's College London, Kings College Hospital and the Sickle Cell Society are looking for young people affected by sickle cell disorder and their families to be part of a study.
They are looking for:
Parent(s) of a child aged 10-15 years with sickle cell disorder (parents may also carry the sickle cell trait)
Children and young people aged 10-15 years of age who have a diagnosis of sickle cell disorder
A sibling aged 10-15 years who has a brother or sister with a diagnosis of sickle cell disorder (sibling may or may not also carry the sickle cell trait)
They are asking parents, children and young people to be involved in various workshops that will focus on training, education or skills that might be helpful to enable children and young people with sickle cell disorder and their families to engage in research. They also want to know what's important for them in terms of research.
The researchers aim for these workshops to take place online and during evenings and weekends.
For more information, please contact us , Jane Chudleigh (Jane.2.chudleigh@kcl.ac.uk)
or Pru Holder (Pru.holder@kcl.ac.uk).