Have Your Say on Sickle Cell Care
The All-Party Parliamentary Group (APPG) on Sickle Cell and Thalassaemia is looking at progress in improving sickle cell and thalassaemia services.
The Sickle Cell Society is gathering evidence for the inquiry and wants to hear from people affected by sickle cell about their experiences of care and what still needs to improve.
Evidence can be submitted until Wednesday 30th September 2026.
At the Sickle Cell & Thalassaemia Support Project, we want to make sure the voices of patients and carers across Wolverhampton, Walsall and Dudley have an opportunity to be heard.
Share your experience with us
Patients and cares can share their experiences with us by completing our online survey or coming along to our event to speak to us in person.
Upcoming in-person session
Tuesday 22 September 2026, 1:00pm – 2:30pm
Sickle Cell & Thalassaemia Support Project
Paycare House
George Street
Wolverhampton
WV2 4DX
Booking is essential.
Complete the survey
If you are a sickle cell patient or carer in Wolverhampton, Walsall or Dudley, you can share your views through our survey.
Survey deadline: Thursday 24 September 2026
Why your views matter
Your experiences can help highlight what is working, what has changed and where further improvements are needed in sickle cell care.
We will use the feedback shared with us to help contribute to the wider call for evidence and ensure the experiences of people in our local communities are represented.
You can also find out more about the APPG inquiry and the Sickle Cell Society's call for evidence on the Sickle Cell Society website.
Your voice matters. Share your experience and help inform the conversation about the future of sickle cell care.
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